Let’s GO mi gente! We GOT THIS!
Hello MS World,
I was diagnosed with MS on my golden birthday weekend, I turned 30 on the 30th of October, and on October 28th to be exact, the doctor walked in and said I have Primary Progressive Multiple Sclerosis (PPMS)! So to kick off my journey, I was diagnosed with the last and final stage of MS. Until I was tagged with it, I had never even heard of the disease called Multiple Sclerosis. It was a complete change of lifestyle instantly.
I went from working 50-60 hours a week, to being jobless and confined to a wheelchair. The good thing about this was that to me, I never dwell on negativity. I always knew and know that the grass is always greener on the other side. God doesn’t give to anyone what he knows they can’t handle. When God closes a door, he leaves a window open.
The first medication I started to treat or better said slow down the progression of MS was Rebif auto-injectable syringes. It was a 3 times a week treatment (M,W,F). At the time, I had some strength and was walking on crutches. Since then, I have developed a drop foot on my right side and have started to take Ampyra tablets to try and better my walking. Several months later, on January 2nd, 2017, I suffered a grand mal seizure that lasted a complete 45 minutes. That right there wiped out any force or strength that I had. I was hospitalized for a full month. I needed help with bathing, getting dressed, eating, and EVERYTHING else to get through the day! I overcame that. I continued going to therapies, got stronger while using crutches, started walking better, and improved in every aspect. At the end of March that same year, the FDA approved the Ocrevus infusion and my neurologist got me on it right away. This is an infusion done every 6 months. Slowly but surely things started to come together.
In October 2018, I suffered 3rd-degree burns from mid-thigh down on both legs from a super freak accident. Just when I thought things were getting better and then BOOM! I was hospitalized for another 4 months. The first 2 months at the University of Chicago MED hospital, in which I had 7 surgeries and tons of skin graphs. Then I was transferred to the Shirley Ryan Ability Lab, where I spent another 2 months. There I continued the healing process and at the same time began therapy. This time around, I needed PT, OT, speech therapy, and several others. I really felt this was going to be the end of good things happening in my life. Once I got back home, I found myself bed-bound. Brushing my teeth in bed and bathing with wipes and a sponge because my wheelchair couldn’t fit the bathroom lasted a full 2 weeks.
That’s when I thought “a defeated mindset cannot declare victory”. I decided to pick my head up and became my own advocate. Grab life by the horns and ride this bull out! And NOW, little by little, brick by brick, I’m overcoming ALL OBSTACLES! Eating better, walking better, and feeling better! At the end of the day, all I needed was what the Lord provided me with. Faith and Trust in him.
Let’s GO mi gente! We GOT THIS!
Hello MS World,
This is your “boi M to da T”, Armando Trinidad, but that’s how I introduce myself in my videos on my YouTube channel, and this is my MS story in a nutshell.
I was diagnosed with MS on my golden birthday weekend, I turned 30 on the 30th of October, and on October 28th to be exact, the doctor walked in and said I have Primary Progressive Multiple Sclerosis (PPMS)! So to kick off my journey, I was diagnosed with the last and final stage of MS. Until I was tagged with it, I had never even heard of the disease called Multiple Sclerosis. It was a complete change of lifestyle instantly.
I went from working 50-60 hours a week, to being jobless and confined to a wheelchair. The good thing about this was that to me, I never dwell on negativity. I always knew and know that the grass is always greener on the other side. God doesn’t give to anyone what he knows they can’t handle. When God closes a door, he leaves a window open.
The first medication I started to treat or better said slow down the progression of MS was Rebif auto-injectable syringes. It was a 3 times a week treatment (M,W,F). At the time, I had some strength and was walking on crutches. Since then, I have developed a drop foot on my right side and have started to take Ampyra tablets to try and better my walking. Several months later, on January 2nd, 2017, I suffered a grand mal seizure that lasted a complete 45 minutes. That right there wiped out any force or strength that I had. I was hospitalized for a full month. I needed help with bathing, getting dressed, eating, and EVERYTHING else to get through the day! I overcame that. I continued going to therapies, got stronger while using crutches, started walking better, and improved in every aspect. At the end of March that same year, the FDA approved the Ocrevus infusion and my neurologist got me on it right away. This is an infusion done every 6 months. Slowly but surely things started to come together.
In October 2018, I suffered 3rd-degree burns from mid-thigh down on both legs from a super freak accident. Just when I thought things were getting better and then BOOM! I was hospitalized for another 4 months. The first 2 months at the University of Chicago MED hospital, in which I had 7 surgeries and tons of skin graphs. Then I was transferred to the Shirley Ryan Ability Lab, where I spent another 2 months. There I continued the healing process and at the same time began therapy. This time around, I needed PT, OT, speech therapy, and several others. I really felt this was going to be the end of good things happening in my life. Once I got back home, I found myself bed-bound. Brushing my teeth in bed and bathing with wipes and a sponge because my wheelchair couldn’t fit the bathroom lasted a full 2 weeks.
That’s when I thought “a defeated mindset cannot declare victory”. I decided to pick my head up and became my own advocate. Grab life by the horns and ride this bull out!
And NOW, little by little, brick by brick, I’m overcoming ALL OBSTACLES! Eating better, walking better, and feeling better! At the end of the day, all I needed was what the Lord provided me with. Faith and Trust in him.
Let’s GO mi gente! We GOT THIS!
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